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Research Participation Opportunities

Would you like to take part in a study to measure the impact of dance on people with Parkinson’s disease?

We are looking for:
Independently living, ambulatory men or women who are diagnosed as having idiopathic Parkinson’s disease; aged between 30 to 85 years; and who have not participated in a dance programme in the past six months.

Your participation would include:
Being allocated randomly to a dance group or a control group. Please note that depending on your allocation you may be in the Dance for Parkinson’s (DfP) group or the control group.

However, the results of the study will be shared with you after completion and it is expected that your knowledge of Parkinson’s disease will be extended. Both groups will receive a useful series of assessments which will help to understand Parkinson’s by obtaining information about performance regarding walking style, cognitive function and some other outcomes.

What will you be asked to do?

If you are allocated into the dance group, you will have the opportunity to: If you are allocated into the control group,you will have the opportunity to:
·        Attend 2 assessment sessions before the series of dance classes.

·        Participate in DfP classes twice a week for 12 weeks.

·        Attend 2 assessment sessions after the series of dance classes.

·        Attend two follow up assessment sessions in the 12th week after completing the dance class.

 

·        Attend 2 assessment sessions before the 12 week research period.

·        Follow your usual exercise and medication routine for the duration of the 12 weeks.

·        Attend 2 assessment sessions after the 12 week research period.

·        Attend two follow up assessment sessions in the 12th week after completing the research period.

·        Participate in a free complimentary dance class after the 12th week follow-up assessment sessions.

·        Free Dance for Parkinson’s disease (DfPD®) DVD


The Dance for Parkinson’s (DfP) classes will be:

  • Free of charge
  • 75-minute classes
  • Twice a week for 12 weeks
  • Held at QUT Kelvin Grove Campus
  • Modelled on the internationally recognized DfPD® programme
  • Conducted by two DfPD® trained instructors who are routinely conducting DfP classes at Queensland Ballet

Please note that free parking is provided during visits to QUT for assessments. However, you are required to cover your own parking expenses for your visits to any dance classes.

What is Dance for Parkinson’s?
If you are interested in learning more about Dance for Parkinson’s please go to:
https://www.queenslandballet.com.au/learn/fitness-and-wellbeing/dance-for-parkinson-s

If you would like to participate please contact:
Ms Nadeesha Kalyani    07 3138 6426       nadeesha.haputhanthirige@hdr.qut.edu.au
Ms Erica Rose Jeffrey            07 3040 1930             ericarose@danceforparkinsonsaustralia.org
Professor Graham Kerr         07 3138 6303             g.kerr@qut.edu.au

QUT Human Research Ethics Committee, approval number 1700000005.


RESEARCH PARTICIPANTS NEEDED: University of Sydney: May 2017

Discipline of Speech Pathology
You are invited to participate in a study that will evaluate the validity of a Parkinson’s disease specific questionnaire that is currently used by speech pathologists. In this study, you are invited to complete an online survey. All identifying personal information will not be collected and responses will remain anonymous. The questions in the survey will include a range of relevant topics such as personal characteristics, physical and emotional well-being.

Who is eligible?
Aged 18 years or over
Diagnosis of Parkinson’s Disease
English-speaking
Ability to complete the questionnaire

What does this study involve for me?
This survey will obtain information about your background health status and daily routines. This survey will explore the impacts of Parkinson’s disease on everyday life and how these influence levels of physical and emotional comfort. Participating in this survey is voluntary and we appreciate your time when participating.

The questionnaire can be found on:
https://www.surveymonkey.com/r/ROMPstudy 

If you want more information 0n this project, please feel free to contact Dr. Hans Bogaardt at 02 – 9351 9334 or email: hans.bogaardt@sydney.edu.au. A multi-page Patient Information Statement, describing the study in detail, is available and will be sent to anyone who expresses their interest in this study.

The ethical aspects of this study have been approved by The University of Sydney HREC (Protocol no. 2017/200)


Research Participation: The Evaluation of Cognitive-Communication in Parkinson’s Disease Online – May – July 2017

Have you noticed changes to your language or thinking processes in communication?

Some examples might be:

  • trouble finding the right word
  • difficulty expressing your thoughts clearly
  • taking longer to generate things to say
  • losing your train of thought
  • rambling about topics or quickly changing topics
  • taking longer to process what other people say
  • difficulty remembering what other people say
  • difficulty understanding what other people say
  • difficulty following or maintaining attention during one-on-one or group conversations

If you experience any of these changes, we would like to hear from you.

Megan Swales (PhD candidate) and her supervisory team from the University of Queensland are looking for people with Parkinson’s disease to complete a range of assessments on language and thinking processes in communication. These assessments will be completed in your home by two speech pathologists at the same time, one in-person and the other online (via videoconferencing similar to Skype).

If you live the South-East Queensland region and you are interested in knowing more about the study, please contact Megan Swales either by phone 0430 513 414 or email megan.swales@uqconnect.edu.au

This project has been approved by the UQ Human Ethics Research Committee (#2016001488).


CALL FOR PARTICIPANTS – October 2016 – Ongoing

pqi-picture-advertDo you feel your communication or swallowing has changed because of Parkinson’s disease?

If you said yes, then we want to hear from you.

We invite you to complete a 20-25 minute survey on communication and swallowing changes. We will also ask questions on speech therapy services and the use of technology for health care.

The only criteria for participating is a diagnosis of Parkinson’s disease and that you feel your communication and/or swallowing has changed because of PD. You do not have to have any experience with speech therapy services or technology-based health care to take part in this study.

This will be a national survey across Australia to find out more on these topics. Your contribution will help to better understand the changes people with Parkinson’s disease experience, the services available and views on the idea of using technology for therapy.

Once you have completed the survey, you select to enter a draw to win 1 of 2 $50 Coles Myer gift cards. Instructions on how to do this are at the end of the survey.

You can complete the survey either online or on paper.

Click this link to access the survey online: https://survey.its.uq.edu.au/Checkbox/Communication-and-Swallowing-Changes-in-People-with-Parkinsons-and-Views-on-the-use-of-Technology-in-Therapy.aspx

If you have any questions about the study, or would like a paper copy of the survey, please contact the lead researcher Megan Swales either by email (megan.swales@uqconnect.edu.au) or by phone (0430 513 414)

Supervisors: Prof. Deborah Theodoros, Prof. Trevor Russell and Dr. Anne Hill


 

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